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AUCD - Poster Symposium: Health, Wellness, Recreation & Related Issues

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Monday, November 6, 2017 4:40 PM - 5:40 PM

Location: Congressional Ballroom C


Presenters

Differences in Self-Reported Outcomes of Health & Well-Being Among Adults Diagnosed with ASD as Children Compared to as Adults
Meredith Nicholson, B.A., JHSPH Masters Candidate & MCDD Trainee, Kennedy Krieger Institute, UCEDD/LEND
Christopher Smith, Ph.D, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Alison Marvin, Ph.D, Interative Autism Network, Baltimore, MD, United States;
Kiely Law, MD, MPH, Interative Autism Network, Baltimore, MD, United States;
Briella Baer, MHS, Interative Autism Network, Baltimore, MD, United States;

Much autism research is conducted with the needs of children in mind. However, autistic children eventually become autistic adults. Additionally, an increased awareness of autism spectrum disorder (ASD) has led to new adult diagnoses. Our objective is to compare health and well-being outcomes among adults with ASD who were diagnosed as children (under 18 years old) compared to adults with ASD who were diagnosed as adults (18+ years old).

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Parental Sexual Health Attitudes and Sexual Health Self-Efficacy Beliefs to Be Sex Educators for Their Children with Autism Spectrum Disorders
Tara Lutz, PhD, MPH, CHES, , A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
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Parents of children with autism spectrum disorder (ASD) communicate with their child about sex less frequently and about fewer topics compared to parents of typically-developing children. Studies indicate that children with ASD are interested in and engage in sexual behaviors at similar rates as their typically-developing peers, but are less likely to receive sex education. Parents of children in grades 6-12 were recruited to complete an anonymous online survey.

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Play Ball, Pick Fruit: Using the CATCH Grant to Empower Bronx Families with Special Needs to Make Healthy Choices.
Mana Mann, MD, Fellow, Developmental-Behavioral Pediatrics, Rose F. Kennedy Center, UCEDD/LEND
Mana Mann, MD, Bronx, NY, United States;
Rachel Yarmush, BA, Bronx, NY, United States;
Carol Terilli, PT, DPT, Bronx, NY, United States;

Children with special needs are at increased risk for obesity. An American Academy of Pediatrics Community Access to Child Health (CATCH) Planning grant was awarded to identify factors contributing to obesity among children with special needs in Bronx, NY. Partnerships were created between clinicians in pediatrics, physical therapy, and nutrition and a local community-based organization. Ongoing projects include focus groups and physical activity curriculum development.


Community Piece It Together, an Exercise Program for Teenagers and Young Adults with ASD
Lily Gullion, , Center for Disability Resources, UCEDD/LEND
Lily Gullion, OTS, Charleston, SC, United States, SC - Center for Disability Resources, UCEDD/LEND;
Caitlin Keller, SPT, Charleston, SC, United States, SC - Center for Disability Resources, UCEDD/LEND;
Julia Levin-Rector, BSN, RN, Charleston, SC, United States, SC - Center for Disability Resources, UCEDD/LEND;

Piece It Together is an existing exercise and wellness program created by the Medical University of South Carolina for teenagers and young adults with ASD and other neurodevelopmental disorders. In this project, Piece It Together was adapted to bring the program to a new community using minimal equipment and additional perspectives from the disciplines of occupational therapy, physical therapy, and nursing.

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Training Adult Healthcare Providers in Providing High Quality Care to Patients with Developmental Disabilities
Ilka Riddle, PhD, UCEDD Director, University of Cincinnati UCE, UCEDD/LEND
Marion Cosgrove Rauch , Trainee, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Stacey Gruber, Trainee, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Ashley Santana, Trainee, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Amy Turner-Iannacci, Trainee, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Kara Ayers, PhD, Cincinnati, OH, United States;
Laura Srivorakiat, PsyD, Cincinnati, OH, United States;

This poster provides an overview of the development of online training modules for healthcare providers on how to best work with adults who have DD. Background, methods, curriculum and evaluation will be discussed.

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Examining Attitudes Toward the Sexuality of People with Intellectual Disability: An Analysis of Medical, Mental Health, and Developmental Disability Providers
Hannah Ginn, MSW, Project Coordinator, Center for Persons with Disabilities, UCEDD/LEND
Hannah Ginn, MSW, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
Canyon Hardesty, M.S., CHES, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;

This poster presents results from a multi-state survey in the Rocky Mountain region assessing the attitudes of medical, mental health, and disability service providers regarding the sexual rights, self-control, non-reproductive sexual behavior, and parenting of people with intellectual disability. Examination of community provider attitudes toward the sexual rights and sexual expression of those with ID is crucial to supporting the voices of individuals with disabilities, their families, and communities.

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Training Medical Students in Patient Care for People with Disabilities: A Pilot Clinical Encounter Program
Jill Crane, BA, , The Nisonger Center, UCEDD/LEND
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A clinical encounter with patients with developmental and physical disabilities was integrated into The Ohio State University College of Medicine's curriculum. Medical students met with people with disabilities in a simulated clinical setting and practiced taking a social history. Students indicated that the experience was beneficial to their understanding of how to best work with patients who have disabilities.

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Tee Party: Engagement in the Sport of Golf to Change Participation for Children with Developmental Disabilities and Their Families
Timothy Conly, OTR, Occupational Therapist, Rose F. Kennedy Center, UCEDD/LEND
Timothy Conly, OTR, Einstein/Montefiore Medical/RFK, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Elizabeth Ridgway, OTD, Einstein/Montefiore Medical/RFK, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Carol Terilli, DPT, Einstein/Montefiore Medical/RFK, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Kadine Walfall, DPT, Einstein/Montefiore Medical/RFK, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Daniella Soba, OTR, Einstein/Montefiore Medical/RFK, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
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A golf program was developed for children with disabilities and their families to learn the sport basics, engage in physical activity, access an outdoor community resource, break down barriers by participating in a sport and entering a setting that is not commonly accessed by people with disabilities. This program took place in a therapy center and on the serene green pastures of a Golf Course in the Bronx.


Healthy Eating in Early Childhood Education Centers: Perceptions of Staff Regarding Implementation of Evidence-Based Nutrition Education Curriculum
Megan Cassell, BA, , The Nisonger Center, UCEDD/LEND
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It is vital that childcare providers instill healthy eating habits in children from an early age. This project aimed to address barriers to the implementation of a healthy eating curriculum in an early childcare setting. We identified barriers to implementation, provided teacher education to address barriers, and completed a follow-up assessment of barriers to assess change.


Female Medicaid Enrollees with Disabilities and Discussions with Health Care Providers about Birth Control and Sexually Transmitted Infections
Caitlin Crabb, MPH, , Institute on Disability & Human Development, UCEDD/LEND
Randall Owen, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Tamar Heller, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;

This presentation describes factors that are associated with whether or not health care providers discuss birth control and sexually transmitted infection (STI) prevention with female Medicaid managed care enrollees with disabilities.

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A Shared Vision, a Shared Voice: Using the Sexuality Education Protocol (SEP) to Evaluate Sexuality Curricula for People with I/DD
Lindsay Sauve, MPH, , Oregon Institute on Development & Disability, UCEDD/LEND
Kiersi Coleman, Portland, OR, United States, OR - Oregon Institute on Development & Disability, UCEDD/LEND;
April Kayser, Multnomah County Health Department, Portland, OR, United States;
Beth Appert, Multnomah County Health Department, Portland, OR, United States;
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Educators have increasingly more options for sexual health education curricula for individuals with disabilities. The Sexuality Education Protocol (SEP) can be a tool for evaluating whether curricula meets the needs of their audiences. Members of a Community Advisory Group led by Multnomah County Health Department in Portland, OR assessed six sexuality education curricula using the SEP. This poster will discuss methods, findings, and a plan for disseminating the information.


AUCD Network Activities to Address Fetal Alcohol Spectrum Disorders
David Deere, MSW, MTH, Director, Partners for Inclusive Communities, UCEDD/LEND
Eric Boyer, Anchorage, AK, AK - Center for Human Development, UCEDD/LEND;
Ann Carrellas, MSW, Detroit, MI, MI - Developmental Disabilities Institute, UCEDD/LEND;
Mary O'Connor, PhD, Los Angeles, CA, CA - Tarjan Center UCLA, UCEDD;
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Fetal alcohol spectrum disorders (FASD) are the leading cause of preventable cases of intellectual disabilities, affecting 20-50 per 1,000 births, with the average case costing government $2-4 million annually. This poster will help you learn how you can engage your community to better support persons with FASD. Presenters from four UCEDDs will describe how their programs are addressing this condition.


National Resources for UCEDDs/LENDs to Use to Address Fetal Alcohol Spectrum Disorders
David Deere, MSW, MTH, Director, Partners for Inclusive Communities, UCEDD/LEND
Eric Boyer, Anchorage, AK, AK - Center for Human Development, UCEDD/LEND;
Ann Carrellas, MSW, Detroit, MI, MI - Developmental Disabilities Institute, UCEDD/LEND;
Kathy Mitchell, MHS, LCADC, National Organization on Fetal Alcohol Syndrome, Washington, DC;
Mary O'Connor, PhD, Los Angeles, CA, CA - Tarjan Center UCLA, UCEDD;
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Fetal alcohol spectrum disorders (FASD) are the leading cause of preventable cases of intellectual disabilities, affecting 20-50 per 1,000 births, with the average case costing government $2-4 million annually. This poster will help you learn where you can turn for support in efforts to address this condition. Presenters from the National Organization on Fetal Alcohol Syndrome (NOFAS) and four UCEDDs will describe resources available from CDC and NOFAS.