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AUCD - Poster Symposium: Systems Change

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Monday, November 6, 2017 3:20 PM - 4:20 PM

Location: Grand Ballroom South Salon


Presenters

Developing and Sustaining State Partnerships That Quicken State Response to Individuals with Disabilities and Their Families During Natural Disasters
Lesley Cottrell, PhD, Professor & Director, Center for Excellence in Disabilities, UCEDD/LEND
Elizabeth Prendergast, MS, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
Amy Mills, BS, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
Anna Hathway, BS, Charleston, WV, United States;
Anthony Richards, Charleston, WV, United States;
Sarah Waukeen, MS, Washington DC, DC, United States;
Ann McDaniel, Charleston, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
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We will describe how partnership development within West Virginia helped quicken the state response to individuals with disabilities and their families after a flood impacted more than six central counties requiring many to evacuate the area and rebuild. Using a systems-based approach, we will outline the partnership development and immediate response planning that took place immediately after the event and continues to date. Sustained efforts will also be discussed.


HCBS-ACT: Stakeholder Education on HCBS Settings Rule in Illinois
Aleksa Owen, MSW, Research Specialist, Institute on Disability & Human Development, UCEDD/LEND
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This session will discuss the outcomes of a training project designed to mobilize people with disabilities and their family members as advocates for the Medicaid HCBS Settings Rule transition in the state of Illinois. Lessons learned, including barriers and facilitators, will be included, as well as the plan for next steps.

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Improving Care of Children and Youth with Special Health Care Needs Through Multi-Agency Collaboration
Shannon Bryan, MPH, , The University of Arizona, LEND
Lauren Meyer, MA, AZ, The University of Arizona;
Victoria Tsze, BA, AZ, The University of Arizona;

Multi-agency collaboration is essential to promoting the wellbeing of children with special healthcare needs. ArizonaLEND shares their collaborative method and lessons learned in their effort to improve the working relationship between the state child safety department and a local medical home. Participants will learn how the Community Organizing Model was used to support this partnership and how effective partnerships may lead to quality health care outcomes for children and families.

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Michigan Prepares for Transition: Assessing for Compliance with the CMS Home and Community Based Services Rule
Angela Martin, LMSW, Assoc Director for Community Supports and Services, Developmental Disabilities Institute, UCEDD/LEND
Amal Alsamawi, MPH, Detroit, MI, MI - Developmental Disabilities Institute, UCEDD/LEND;

The Michigan Habilitation Supports Waiver provides Home and Community (HCBS) supports to ~7,800 Medicaid beneficiaries with intellectual/developmental disabilities. The Michigan Developmental Disabilities Institute (UCEDD) at Wayne State University collaborated with the Michigan Department of Health and Human Services surveying individuals (4,857) receiving supports and their providers (3,682 residential; 2,817 non-residential) assessing compliance with the HCBS rule. This presentation will report 2017 findings and next steps for compliance.

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Unification of LEND/UCEDD/IDDRC at the University of Kansas
Sheida Raley, M.Ed, UCEDD Trainee; Doctoral student special education
Jessica Schuttler, Ph.D., Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Rene Jamison, Ph.D., Kansas City, KS, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Karrie Shogren, Ph.D., Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Kathryn Ellerbeck, MD, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
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Our voices are stronger when united! The University of Kansas has the unique opportunity to house all 3 of AUCD's network centers: UCEDD, LEND, and IDDRC. This poster highlights recent efforts to better align these projects through training, research, and program related activities. Elements include unified "branding" between programs, joint training experiences through cross-disciplinary coursework, shared practical experiences, and collaborative research endeavors. Current initiatives, next steps, and lessons learned.


The Power and Practice of Community Conversations: Expanding Opportunities for People with Intellectual and Developmental Disabilities
Erik Carter, Ph.D., Professor, Vanderbilt University, UCEDD/LEND
Elise McMillan, J.D., Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
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The persistence of disappointing outcomes for individuals with IDD demands new and effective pathways for changing the post-high school landscape. We present "community conversations" as a promising approach for identifying community assets and opportunities, as well as spurring systemic change in local communities. We describe this approach and its core components; illustrate its applications to employment, educational, and independent living; and highlight how they can inform policy and practice.

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State of the States in Self-Direction for Individuals with Intellectual and Developmental Disabilities (2015)
Matthew DeCarlo, PhD, Assistant Professor, Radford University
Jennifer Hall-Lande, PhD, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;

The poster will provide an overview of self-directed waivers, state programs, and service options for all 50 states and DC. National trends in program features and design were examined to provide a clear picture of self-direction as it is currently implemented across the United States. Interviews with state-level administrators explored how self-direction is defined and design decisions in the implementation process.

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Charting the LifeCourse Framework: Advancing a Voice for Promising Practices at All Levels of Supporting Individuals with I/DD and Families
Michelle (Sheli) Reynolds, PhD, Associate Director-Training&Technical Assistance , University of Missouri, UCEDD/LEND
Wanda Felty, Family Member, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
Joan Christopher, Family Member, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Melane Barlow, Family Member, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;
Celia Schloemer, Family Member, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Jane St John, Family Member, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

Charting the LifeCourse Framework has been developed and advanced through the work of the National Community of Practice for Supporting Families, now consisting of 17 states. UCEDD family leaders will describe and provide examples of the Charting the LifeCourse framework guiding policy, practice and systems change in supporting individuals with I/DD and families at all levels in their states-family and self-advocacy; professionals and organizations; and systems and policy.


Business Acumen Center for Disability Organizations: Partner or Provider? How to Effectively Demonstrate Your Value to Payers
Erica Anderson, MA, Senior Director of Business Acumen, National Association of States United for Aging and Disabilities
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CBOs such as UCEDDs, Centers for Independent Living and other providers of services for people with disabilities are critical partners in the successful implementation of MLTSS. These partnerships require effective business skills. Participants in this session will learn about the resources available through the Business Acumen Resource Center and will be able to share ideas and other tools that may be beneficial to the success of CBOs across our nation.


Writing Group Model for the Development of Research-to-Practice Briefs
Leann DaWalt, PhD, Senior Scientist, Waisman Center, UCEDD/LEND
Anne Harris, PhD, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Gail Chodron, PhD, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;

The current presentation will focus on the use of a writing group model to support the development of research-to-practice briefs. We will discuss the literature on writing groups as well as the results of a pilot writing group project with 2nd year Leadership Education in Neurodevelopmental Disabilities (LEND) trainees. The goal of the project was to increase trainee engagement in the dissemination of research findings to targeted audiences.


Positive Youth Development: Interim Findings on Inclusive 4-H in Oregon
Gloria Krahn, PhD, MPH, Endowed Chair in Family Studies, Oregon State University
Jen Taylor, Oregon State University, Corvallis, OR;
Leanne Giordono, Oregon State University, Corvallis, OR;
Meghann Fenn, Oregon State University, Corvallis, OR;
Marilyn Lesmeister, Oregon State University, Corvallis, OR;
Sara Le Comte, Oregon State University, Corvallis, OR;
Amanda Ruesch, Oregon State University, Corvallis, OR;
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Participation in afterschool activities contributes to positive outcomes like peer relationships and future employment, but youth with disabilities participate less. 4-H is the most popular afterschool program, reaching 6 million youth. We present interim findings on status, barriers and facilitators of disability inclusion in 4-H programs in Oregon, with relevance for national 4-H and other organizations.


Evaluating the Impact of Research Assistant Positions with National Core Indicators (NCI) on Emerging Professionals and the Developmental Disability Workforce
Alice Miller, MSW, MPH, Project Coordinator, Oregon Institute on Development & Disability, UCEDD/LEND
Rhonda Eppelsheimer, LCSW, portland, OR, OR - Oregon Institute on Development & Disability, UCEDD/LEND;
Jennifer Hoshkins, portland, OR, OR - Oregon Institute on Development & Disability, UCEDD/LEND;

The National Core Indicators (NCI) assessment tool is widely used to assess outcomes of support services and quality of life for people with developmental disabilities. In addition to describing NCI, this poster investigates NCI as a way to educate emerging professionals on disability and disability services, bring people into the field of developmental disability, and create opportunities for job seekers interested in the field of developmental disability.

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The Early Childhood Personnel Center: Systems-level Approach to Generating Knowledge, Leadership, & Personnel Development for Infants & Young Children Disabilities
Mary Beth Bruder, Ph.D., Director, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Annie George-Puskar, M.S., Farmington, CT, United States, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND;

The Early Childhood Personnel Technical Assistance Center (ECPC) was funded in 2013 to provide knowledge generation, leadership development and collaboration, and technical assistance to States on issues related to workforce development for infants and young children with disabilities and their families birth through five years old. This session will discuss the history and evolution of the ECPC across each area, including specifics on past and current initiatives of the Center.

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Lifting Up Voices in Education: Wyoming's Translation of the ECHO Model for Use Beyond Health
Sandy Root-Elledge, MA, Executive Director, Wyoming Institute for Disabilities, UCEDD
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This presentation will discuss the translation of the ECHO Model from healthcare to education by the University of Wyoming-Wyoming Institute for Disabilities (WIND). This adaptation was built upon identification of community needs. These ECHO networks connect schools and professionals working with students with disabilities in preK-12 settings across the state and country. Networks to be discussed include assistive technology, autism, behavior supports, secondary transition, and early childhood.

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Reducing Recidivism Through Cross-System Collaboration and Connections
Caitlin Owens, MSW, Program Manager, Center for Disabilities and Development, UCEDD/LEND
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To increase success and permanence in the community after incarceration, high quality, coordinated services and supports are needed before, during, and after release to address mental health and substance use disorder treatment needs, employment skills, healthcare, housing, and more. We will discuss a training developed by the Iowa UCEDD that aims to improve cross-system collaboration by strengthening connections between prison and community corrections staff, state agencies, and community service providers.

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Advancing Person-centered Planning in Long-term Care: Lessons Learned From the Sonoran UCEDD's Collaboration with Arizona's Medicaid Program
Jaze Sollars, PhD, MPH, , University of Arizona
Julie Armin, PhD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Jacy Farkas, Master of Education in Educational Policy, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Leslie Cohen, JD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
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In this presentation, we describe our process for partnering with Arizona's Medicaid program to create and implement a uniform system for person-centered service planning (PCP) across the Arizona Long Term Care System (ALTCS) Home and Community Based Settings (HCBS) and Managed Care Organizations (MCO). We discuss our findings from the collection of stakeholder input to date, talk about its strengths and limitations, and outline next steps.

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