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AUCD - Poster Symposium: Clinical Needs & Interventions

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Monday, November 6, 2017 3:20 PM - 4:20 PM

Location: Congressional Ballroom A


Presenters

Advocating for Client Unmet Needs/Gaps in Services for Persons with Feeding and Swallowing Disorders
Lawrencia Okai, MSW, MPA, , Center for Excellence in Disabilities, UCEDD/LEND
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This proposal presents evaluation on the Feeding and Swallowing Clinic of the WVU Center for Excellence in Disabilities and clients' unmet needs in accessing the services of the clinic. It further presents findings on how client unmet needs pose as a barrier in assessing or implementing treatment strategies. This study is important as it provides the context, or environment within which assessment or treatment is carried out.

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New Mexico Children's Medical Services Social Workers: Care Coordination and the Medical Home
Kirsten Bennett, PhD RD LD, Director Envision New Mexico, Center for Development & Disability, UCEDD/LEND
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Children and Youth with Special Health Care Needs (CYSHCN) in New Mexico (NM) experience barriers accessing health care and support. This initiative focused on identifying how the NM Title V program Children's Medical Services (CMS) and its medical social workers could improve care coordination for CYSHCN. Focus groups in five communities described barriers and suggestions to improve communication, collaboration, and access to information about resources when providing care for CYSHCN.

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DesignRead: Drawing with Words
Jourdan Saunders, Speech Language Pathologist, , American Speech Language Hearing Association (ASHA) member
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DesignRead offers auditory, visual and kinesthetic ways of learning. It was developed to allow students to become avid readers and learners. It combines basic sketching while reading a story. Imagine creating a visual picture in your head of a story as it develops. This program creates a visual link between words and pictures to increase reading comprehension and put excitement back into reading.


Recovering from Concussion in the Classroom: West Virginia's Road to Return-to-Learn
Angela Morales, MS, TBI Resource Coordinator, Center for Excellence in Disabilities, UCEDD/LEND
Nick Davidson, BS, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
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Have you ever wondered about the protocols that are (and are not) in place to help school-aged students who have sustained a concussion to successfully return to the learning environment? This poster highlights how the WV University Center for Excellence in Disabilities' Traumatic Brain Injury Program explored evidence-based practices and existing Return-to-Learn programs, developed protocols for policymakers and educators, customized a state-specific model program, and began piloting it in schools.

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Screening for Anemia in Children with Down Syndrome
Shruti Mittal, , Center for Disability Resources, UCEDD/LEND
Angela Larosa, Charleston, SC, United States;
Silvia Pereira-Smith, Charleston, SC, United States;
Andrea Boan, Charleston, SC, United States;
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As part of the 2011 AAP health supervision guidelines for children with Down Syndrome (DS), annual screening for iron deficiency anemia (IDA) is recommended between the ages of 1-18 but the evidence supporting this recommendation is limited. IDA is associated with cognitive impairment, and children with DS are a particularly vulnerable population for neurocognitive deficits. This study assessed the prevalence of anemia in children with DS.

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Sleep Problems and Executive Function in Children with Developmental Disabilities
Maria Valicenti-McDermott, MD MS, Assistant Professor Pediatrics, Rose F. Kennedy Center, UCEDD/LEND
Katharine Lawson, PhD, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
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Executive functioning involves essential self-regulating skills that are important for academic achievement. We examined the association between sleep problems and executive functioning in urban, largely minority, school age children with language impairment and learning disabilities. We assessed parental reports in children attending a summer psychoeducational treatment program in University Affiliated inner-city Center(n=65), and found a strong association between sleep disturbances and lower executive functioning in this particularly vulnerable group.


Ensuring Voices are Understood: Optimizing Partnerships Between Clinicians and Interpreters Who Participate in Interdisciplinary Developmental Assessments
Kathleen Lehman, , Center on Human Development & Disability, UCEDD/LEND
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Ensuring linguistically diverse families and their children receive valid developmental assessment for neurodevelopmental disorders requires medical interpreters and interdisciplinary clinicians to work as partners. The UW LEND identified training curriculum needs for medical interpreters who support clinicians conducting interdisciplinary developmental assessments. This concurrent session will guide its participants through an interactive, video enhanced curriculum developed by UW LEND for medical interpreters locally and nationally.

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West Virginia's Traumatic Brain Injury Registry: A Rural State's Chronological Exploration of TBI Trends
Joshua Phillips, M.A., M.P.A., TBI Resource Coordinator, Center for Excellence in Disabilities, UCEDD/LEND
Robinson, Brandi, MSW, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
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The focus of this poster is to highlight the unique benefit of the unfunded West Virginia TBI Registry housed at West Virginia University's Center for Excellence in Disabilities (CED). The follow-up survey utilized within this registry process has been unchanged for almost 10 years. This unaltered survey instrument allows for straight forward evaluation of trends through a multi-year period. Five key survey questions will be explored in-depth.

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A Forgotten Disability: A Parental Survey of Cleft Lip and Palate Patients in West Virginia
Paige Rutter, Masters , , Center for Excellence in Disabilities, UCEDD/LEND
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Research has suggested that certain health behaviors may be associated with cleft lip and palate. However, there are still areas, both biologically and clinically, where research can be improved. This study focuses on clinical improvements with treatment. Conducted through a parental survey to discover when and where treatment is received. This will determine if it is more difficult to receive treatment in rural areas such as West Virginia.

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