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AUCD - Poster Symposium: Diagnostic & Clinical Services

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Monday, November 6, 2017 2:00 PM - 3:00 PM

Location: Grand Ballroom South Salon


Presenters

Collaborative Policy Change to Serve Children at Risk for ASD: Presumptive Eligibility for Part C Services in South Carolina
David Rotholz, Ph.D., BCBA-D, Director, Center for Disability Resources (UCEDD), Center for Disability Resources, UCEDD/LEND
Anne M. Kinsman, Ph.D., Children's Hospital, Greenville Health System, SC LEND, Greenville, SC, United States;
Jane M. Charles, MD, Medical University of South Carolina, Charleston, SC, United States;

This session will provide an integrated presentation by three panelists who worked together in developing a successful, novel state effort that increased early identification and services for young children at risk for Autism Spectrum Disorder (ASD) using a two-tiered screening process. SC Act Early Team members (UCEDD and LEND leaders and collaborators) will provide information on the process, results and on-going efforts in this area.


Enuresis amongst Children in Foster Care: Prevalence and Risk Factors
Jenean Castillo, PhD, LEND Faculty, Westchester Institute for Human Development, UCEDD/LEND
Kimberly Trapasso, MA, Valhalla, NY, NY - Westchester Institute for Human Development, UCEDD/LEND;

Enuresis is the repeated voiding of urine into bed or clothes. Proposed causes are psychological, biological and social/environmental. However, the etiology of enuresis is not fully understood. Furthermore, no research was found that analyzed enuresis in foster care children. As such, further research is needed to identify risk factors for children in foster care as well as tips and strategies to better support foster children, their caregivers, and providers.

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Rapid Telediagnosis of Early Autism Spectrum Disorder (ASD): A Valid Approach
Jeffrey Hine, PhD, Assistant Professor of Pediatrics
Jeffrey Hine, PhD, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Neill Broderick, PhD, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Amy Weitlauf, PhD, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Zachary Warren, PhD, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Amy Nicholson, MA, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
J. Alacia Stainbrook, PhD, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
A. Pablo Juarez, MEd, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
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This pilot study examined validity and feasibility of a rapid model of telediagnosis of early ASD. We systematically examined diagnostic agreement between telediagnostic and standard in-person assessment and then assessed feasibility, provider/caregiver satisfaction, and clinical impact of a specific telediagnostic procedure in rural clinics. This study provides initial support for the value and validity of telediagnostic services for children suspected of having ASD.


Assessing LEND Trainees' Knowledge of Autism Spectrum Disorder
Maryellen McClain Verdos, PhD, Assistant Professor School Psychology, Center for Persons with Disabilities, UCEDD/LEND
Tybytha Ryan, Bloomington, IN, United States, IN - Riley Child Development Center - Indiana University, LEND;
Caitlin Winters, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Anna Merrill, PhD, Indianapolis, IN, United States, IN - Riley Child Development Center - Indiana University, LEND;
Naima Dahir, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Gretchen Gimpel Peacock, PhD, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Bryn Harris, PhD, University of Colorado Denver, Denver, CO, United States;
Sarah M. Irby, PhD, Memphis, TN, United States, TN - Boling Center for Developmental Disabilities, UCEDD/LEND;
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Participants at this presentation will: (1) learn about the creation, validation, implementation, and interpretation of an ASD knowledge measure, (2) consider ways in which this measure can be used to address training and professional development needs of cross-disciplinary trainees and other relevant populations (e.g., practitioners, parents) to improve on ASD knowledge, and (3) discuss the second part of the research project, which examines pre-post ASD knowledge for LEND trainees.

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Social-Emotional Difficulties in High-Risk Infants
Shruti Mittal, MD, Developmental-Behavioral Fellow, Center for Disability Resources, UCEDD/LEND
Lakshmi Katikaneni, MD, Charleston, SC, United States;
Jennifer Poon, MD, Charleston, SC, United States;
Myla Ebeling, Charleston, SC, United States;
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Children with SE difficulties (SED) are at an increased risk for academic underachievement, delinquency, and behavioral problems. The Ages and Stages Questionnaire - Social Emotional (ASQ:SE) is a level 1 screening tool that is commonly used to identify these concerns.This study aimed to identify risk factors and outcomes for neonates seen in a NICU Graduate Clinic scoring at risk for SED on ASQ-SE.

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Medicaid Policies & the Impact on Equitable Healthcare: An Augmentative and Alternative Communication Perspective
Catherine Kanter, MS, CF-SLP, Speech Language Pathology Clinical Fellow, Waisman Center, UCEDD/LEND
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Communication is key to meaningful participation in all aspects of life. For individuals with complex communication needs, access to augmentative and alternative communication (AAC) devices and treatment is crucial. This poster will provide an in-depth qualitative analysis of Medicaid denial of services and equipment, and will offer solutions tried by the Waisman Center Communication Aids & Systems Clinic to improve individuals with disabilities' access to AAC services.

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Developing and Implementing Case-Based Telehealth Training for Primary Care Providers of Adults with IDD
Janet Shouse, Bachelor of Journalism, Program Coordinator, IDD Toolkit Project
Elise McMillan, JD, Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Tom Cheetham, MD, Tennessee Department of Intellectual and Developmental Disabilities, Nashville, TN, United States;
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Physicians and advanced practice nurses were recruited to take part in live videoconferences once a month for case-based discussions and education in caring for adults with intellectual and developmental disabilities. Outcome measures included surveys regarding knowledge and comfort levels in treating patients with IDD. We learned key lessons in seeking to recruit providers, in engaging them once enrolled, and in collecting data on patients' emergency department usage and hospitalizations.

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Comparing Phonological Learning in Musical and Spoken Context
Joseph Ahuna, 12/2017: MA Communication Sciences & Disorders, Comparing Phonological Learning in Musical and Spo, Center for Disabilities, UCEDD/LEND
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Many have hypothesized and researched the effectiveness of using music to treat a variety of disorders in various populations. This study analyzed the efficacy of music and singing in articulation therapy and phonological learning. Results suggest that music and singing can assist in improving articulation errors and in recalling novel words in phonological learning.

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Children with Disabilities Rate of Disclosure and Subsequent Outcomes: An Exploratory Study
Trupti Rao, Psy.D., , Westchester Institute for Human Development, UCEDD/LEND
Beth Reiman, Ph.D., Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Caitlin Huber, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Carol Ann Hughes, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Patricia Valcourt, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Marianne Vivien, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
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Studies have shown that children with disabilities are more at risk to be sexually assaulted than their typically developing peers; however, little is known about the prevalence of disclosure rates amongst children with disabilities. This exploratory study examined characteristics of children with disabilities who make a sexual abuse disclosure and their subsequent prosecution and child protection involvement outcomes.


Enhancing Communication for Individuals with ASD During Episodes of Acute Care
Debora Downey, Ph.D., Speech Pathologist, Center for Disabilities and Development, UCEDD/LEND
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There is a growing recognition that improved communication is essential to improve the patient experience. This poster will explore the use of visual aids to enhance communication for individuals with Autism Spectrum Disorder during various medical procedures in the acute care setting to improving the patient's care experience, improved communication between the patient and health care providers, possibly reduce misunderstandings and increase treatment compliance for this population.


Collective Voices: Sustaining and Strengthening Robust Statewide Partnerships
Virginia Miller, DrPH, MS, MPH, Training Director, Alaska LEND, Center for Human Development, UCEDD/LEND
Karen Ward, EdD, Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;

This poster presentation will address how alumni from the Alaska LEND Program form an ongoing statewide network of interdisciplinary leaders. The LEND alumni network offers a collective voice to improve services for children and youth with disabilities and their families. Key factors for sustaining and strengthening partnerships, such as fostering a community of practice to improve services for children and their families will be highlighted.

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Addressing Sexual Health with Pediatric and Young Adult Population: Current Practice of Occupational Therapist, Physical Therapist, and Speech Language Pathologist
Anna Stabio, DOT, , Oregon Institute on Development & Disability, UCEDD/LEND
Lindsay Sauve, MPH, Portland, OR, United States, OR - Oregon Institute on Development & Disability, UCEDD/LEND;
Kim Solondz, OT, Portland, OR, United States, OR - Center on Human Development, UCEDD;
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Sexual health is a basic human right, yet people with disability have been marginalized and stereotyped as asexual beings. This poster presents data from a research study that focused on exploring barriers that currently exist in practice that prevent majority of therapist from discussing sexual health with their pediatric clients.


Assessment Support Needs for People with Intellectual Disability
Kathryn Burke, M.Ed., Doctoral Student/Research Assistant, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
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The researcher examined the literature on assessments for people with intellectual disability to identify support needs and suggested modifications and accommodations. Three major findings emerged: a dearth of literature on the topic, comprehension challenges with assessment items, and insufficient supports aligned with assessments. Recommendations for research and practice are provided.

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Increasing Access to Care among Families of Young Children with Mental, Behavioral, and Developmental Disorders
Jennifer Kaminski, PhD, , Centers for Disease Control and Prevention
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This presentation will first offer an overview of findings from recent reports on family, community, and healthcare factors associated with mental, behavioral, and developmental disorders (MBDDs) among children aged 2-8 years, with special attention to differences in rural and urban settings. Next, the presentation will provide an overview of potential strategies for increasing access to care for those families and summarize existing evidence on evaluated policy approaches.


Genetic Testing in Interdisciplinary Evaluation Clinics: a Model for Practice
Lisette Swails, PhD, Assistant Professor
Kathryn Ellerbeck, MD, MPH, FAAP, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Moira Leahy, EdS, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
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While AAP and ACGME recommend genetic testing for individuals with ASD/IDD, barriers exist to completing these recommendations in practice. This poster describes a model for obtaining genetic testing within interdisciplinary evaluations via buccal swab in partnership with a private company (Lineagen Inc.). Results include utilization rates of genetic testing, rate of significant findings, and use of visual supports to increase patient and parent satisfaction with the buccal swab.


Lifting the Family Voice: A Provider and Parent Perspective on How To Maximize the Family Voice in Clinical Practice
Sandy Tierney, PhD, Former LEND trainee/2nd year parent fellow, Waisman Center, UCEDD/LEND
Emily Meyer, APNP, American Family Children's Hospi8tal, Madison, WI, United States;
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This poster describes the efforts of a provider and a parent to lift the voices of family members of disabled children in the clinical setting. It includes strategies providers and family members can use to maximize the family-provider relationship, a list of empowering questions, and ways to improve family members' and providers' abilities to work together to set relevant, family-centered, realistic and achievable goals for a child.

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